spinergydude

Rights denied

The human rights of people with learning difficulties are being ignored in many areas, said a report last week from the parliamentary joint committee on human rights. Despite improvements in some areas, says the report, such as the closure of long-stay hospitals, the healthcare system still fails too many people – and there are a worrying number of cases of abuse, neglect and hate crime.

Andrew Dismore, who chairs the committee said: “It is extremely depressing to see, 10 years after the introduction of the Human Rights Act, the way people with learning difficulties are treated when using our services.”

The report concluded that “the evidence seen by the committee shows that it is still necessary to emphasise that adults with learning difficulties have the same human rights as everybody else” and recommends action to.....

The issues identified in the report are not new.
My brother is in this area of disabled people. And, you know insurance tried to deny him as well...

DISABILITY IS NOT JUST WHEELCHAIR USERS... Car Accidents disable people all the time, yet the poeple can walk... They may have brain damage... WHAT WILL YOU DO IF YOU ARE THAT PERSON?

I want to share, and spread the rules and such in LAYPERSON SPEAK... Technical Talk, Legal Talk, and all ARE POINTLESS on people who can not grasp it. They CAN NOT RELATE... As in they do not get it.

Maybe this is what is really wanted... Maybe if the people are left in the dark, more money can be ripped off of them ilegally... I was DENIED MY RIGHTS to know how to appeal my insurance comany... Yet, this is just fine... Why? It is not you. If it was you who had been denied you would not be sitting there doing nothing.

Read the entire article by people who can write... I can not, and thus I waste my efforts...

I DO NOT CARE WHAT YOU THINK... I just thought you might have some part of you that is remotely human... If not well then I feel sorry for you, I take pitty on you. You are sad, and pathetic, and pointless in my view...

What is going on is RAPE of the disabled! Raping leaves people feeling lost, alone, scared, shamed, and more... much like the bullcrap that we disabloed people have to deal with every day... I am so tired of the whining people who are able in body, and disabled in the head... Goin on about how they can't pay for gas, and whaaaaa whaaaa whaaaa....

Read the source article: http://www.disabilitynow.org.uk/latest-news2/rights-denied
And, instead of doing nothing, do something GOOD for a change. Just because you decided to buy a GREEN product does not mean ignoring human suffering makes you a good person. A good person does not allow these issues to happen. But, it is plain as day that we do not have MANY good people around.

( You are about to view content that may only be appropriate for adults. )

Appear to be disabled to soceity... Yet, to themselves they are not disabled at all...
Being disabled myself... I can say I have never felt more ABLED in my life...

Maybe we take less for granted than abled bodied, yet disabled attitude people do.



My bro here... You see is cranken the tunes... Maybe next time you see him, just say hey man whtcha listening to... And, maybe... Just maybe... You will see just how able my buddy here really is.

ROCK ON BUDDY! ROCK ON!

Are you tired of the so called news outlets letting you down when you know you have something imprtant you need to express. Well, as long as it is the truth, then you need this connection.


Visit Truth Be Told


Spread the word, this news site is young, but, soon it will be well known, and offer the news the way it used to told... No spin, np crap, no need to hide the truth.

And, if your news is disability in origins by all means you need to share it here. :)

You can post, or I can post it for you. If you need it seen, people are starting to notice, I do not give up.

SpinergyDude - Speaking up for those who can't!

Introduction of SpinnergyDude
Background: Massive customer service in retail of all levels from stockboy to store managar. No one could provide better customer service.
Manual Labor: Landscaping - Was enjoyable, however in 1995 at age 25 a wierd work accident would leave me partially disabled.
Sadly New York State Unemployment office would not provide any sort of help. Even job retraining, which is all I wanted. In fact the employees suggested my wife and I divorce in order for me to get benefits.

My Core: Will not allow me to accept anything if it means I lie or cheat to get it. No, I need to earn everything I get. I saw my parents fraud the system, and promised I would never do that.

1997 - I would have just finished teaching myself how to type, and use my Mac SE 30, then Power Mac PC to learn more about the Office Industry. I also taight myself how to use Photoshop, Quarke Express, and Illustrator (eventhough I hated that one.

2 days after I begged to get back to working from my donated Rolls wheelchair, I would land my first job... A medical records auditor or a local Home Health Aid office for that Summer.

OH, yeah I would learn that pain even level eight and ten... Would not affect my spirit, my mood, my ability to never give up... I never give up.

Even having no college and being pushed through thr public school system as I was learning disabled, and was called retarded, and worse my entire life... I would never give up...
I would work at Stanford University for a few years at the book store during rush. I also years later would work at R.I.T. same thing. What shocked everyone was I could converse al nearly any topic... I was always asked at both colleges if I was an undergrad student. And, they always looked stunned when I said, I read those books you buy for the fun of learning.

Where I would end up working is Strong Memorial Hospital, where even the best they have to offer could not provide medical resolution to my medical condtions. In fact like this site here, I make sure I am the first or one of the first to locate anything at all connected to medical needs, and information. I never give up. And, I do not emplot bots, or spiders, or any automated system to keeo up on things... I am live and searchin constantly for news on anything that could lead to my being out of chronic pain.

Well, after seven years of being around Dr's, and while I am not one, I was properly trained on how to triage people over the phone, and in person for dental emergencies, and often had to translate medical speak for many Dr's into layperson speak so patients could relate to the information in a way they would actually use it for the good it offered. Otherwise it is sad how little people really grasp or listen to this type of stuff.

Due to my diverse background I would learn first hand just how many people in the US at least do not know they have rights. Not in the medical areas, in civil, as well as customer, and of course as patients.

At age 35 just in 2005 I would be diagnosed by my wife of all people with Adult ADHD, turned out I was not learning disabled all those years. And, so I read, and sought out proper Dr's to train me to work with, and not fight my gifts... Well then due to trying to resolve my pain issue, my Dr's very well meaning accidently sent me into a full manic brealdown. I ended up in the mental wing of the very hospital I worked at. And, all I can say was it was a nightnmare to fight through all of that. I made it, and even my Dr who I see now every 6months is shocked that I am on hardly any dose of lithium, .04 in my bood, and I have bever even had one slip, or shift in the mood you see here online. I am back and like never before.

You see 2005 was my rebirth, everything I thought I was, and understood changed... I could type, I could not converse, I actually sounded smart... Like I had always wanted to be...

Then I got a nice job promotion, and pay increase when I went back to work at Strong Orthopaedics... Where as I had before in dentistry helped sign people in make appointments and advocate for them.

I love helping people, and enjoy making people feel human again in a society where everything is about get them in and move them out... In one day on average I could sign in over 110 people. In one months time I would sign in an average of over 2,200 people. And, every last one got all of my full attention. I won awards, and my boss to this day nearly two years later has help my job open for me.I have never once asked, hinted or even bribed her to do so. And, just about anyplace I go people recognize me, even now in my wheelchair...

I do not claim or pretend to be a Dr, nurse, and anything other than a layperson. If someone asks for ideas or tips, I always as I have with my patients... Learn about what you need to, then talk to your Dr. about anything before you try it. I am not trained to know what is best for you.

And, sense 09-07 I have also found out I know a ton more information than I ever thought I knew,,,

In 2005 I would also appeal the SSD system. 2-08 I would sit in front of the Administraive Law Judge... And, in less than 15 minutes leave with my appeal fully over turned.

12-07 My providers sent a 30 page packet of predetermination in. 1-16-08 it was denied.
After my appeal I wrote was denied... I knew something was very wrong. Not just the illegal stuff I called my insurance company on, and the error they made, and all the other medical details that they should have red flagged if legit medical professionals with licensure, and or full creddenitials as a Dr, and specialized in the feild of my particlure medical problem within reason. They would had caught all these things, and made sure that they got resolved before the intitial denial...

4-25-08 I contact my insurance company by emial. 4-30-08 The head of complaints calls me, we finilize some details. Later that same day I get one more call and after a little head to head, point by point sparing... I deliver the KO punch... And, my denial was fully overturned.

Sadly I can not write as well as I would like to be able to... And, to do what you see here.... Has wiped me out pretty much...

However, I never give up, never.

And, now I want to share this knowledge, and if I need to share it with a out of US news resource, as no on here is willing to dare step on the US Medical Insurance Industries toes... Well, not me.

SpinergyDude,
Proactive Patient * Advocate

Also I am not anti insurance, as I also have the blueprints in my mind to allow it to run for less, earn more profit, make people very happy, and reduce rates... It's called "Do it right the first time."

:)

I found this site very useful, and I thought for those in the UK, or for those who in the US are from the UK and your disabled... Here is a great link.

www.disabilitynow.org.uk

If anyone knows of other disabled friendly sites, please feel welcomed to flood me with your links also. Just not ones selling stuff please. ;p

I want to become a easy to find resource for people to find out rules and information in the US of course. But, now that I think about it... I bet, people all over need the same things...

SO Fellow disabled advocates let's share those links with each other please. :) Let's make our networks easy to find for new people, and vets alike... We need to form an information system designed by, and for the layperson.

The saying Knowledge is power. IS correct. However, only if people can relate to the knowledge will if actually EMPOWER PEOPLE... So all the knowledge in the world will not help, if no one can grasp it. Or finds it boring...


Now stop being angry... And DO SOMETHING... :)

Knowledge IS power. However, all the knowledge in the world is nothing whatsoever if no one can grasp it. So, then knowledge is wasted power.

In the blink of an eye.... Spinergy Dude awoke...

And now, somehow, someway non of my disabilities will stop me from sharing how the US Medical Insurance Industry tried to RAPE me of my right to know my rights to appeal, made errors they are aware of, and how....

Millions and millions of people in the US with ALL disabilities, not just the easy to tell ones like me... For you see for 25 years and even on and off after I was disabled in ways not visable... And, yet I was disabled my entire life, and no one ever knew...

Due to my diverse background, and a love to learn.... I would come to have the tools of knowledge to uncover or rather it presented its self to me....

Now if I missed one thing in my own fight for independence... Today right now... Instead of typing...

I would be on the floor in severe pain even more than I am constantly anyway, because my medical insurance decided it would force me into isolation...

In effect make me shamed of my self, feel worthless, lost like no hope, like I am not worthy of being human.... I would feel RAPED....

Because of something called business as usual... And, I am not anti insurance for profit... No. I am anti FRUAD by customers, and ANTI CRIMES committed by insurance companies who take advantage of an little know problem....

What was not counted on was I am one of about 2% of non professional laypeople who realize, understand, and can grasp the entire US Medical Health Care System all related laws, policy, ethics, and I can translate all of the double talk, techno babble into terms everyday people can relate to....

Only I can not write all that well, and even at that... Here in pain right now....

I continue.... Aetna my medical insurance company is not the only one to break laws, prevent people from knowing the right to appeal... But, in four days I was able to go toe to toe with the top level Medical Director, who is on the Baord of Directors.... And, he overturned my denial...

SpinerDude.LiveJournal.com where I am slowly going to do what I did to Aetna to the entire United States.... Become the formost expert in layperson speak on such boring, technical, medical , legal, and more that makes up our system we call the US Health Care System.... And, make it so it relates to YOU.

Because, in the blink of an eye.... Anyone can end up.... Disabled.
I speak for those who can not.

why livejournal scares me

March 21, 2008 by Karl

When SUP took over Livejournal, and there were rumours flying around about SUP being connected with the KGB, I was worried, in a sort of conspiracy-theory-paranoid sort of way. The sort where you don’t actually quite believe it could possibly be true, but you daren’t not believe it just in case.

News broke this week about a Russian blogger, 21-year-old Savva Terentyev, who was arrested for “hate speech” and was this week officially charged, a “crime” for which he may face a fine equivalent to half a year’s annual wage for the annual Russian worker, or 2 years in jail with hard labour.

His “crime” was to make a comment (not a post, just a comment) on the Livejournal of another blogger, Boris Suranov, in which he was critical about local police. When Terentyev was arrested in August 2007 his comment was forcibly deleted (by livejournal.ru management, presumably) but a screenshot of it has been preserved here. Not that I expect any of my friendslist read Russian, but, you know.

The website Pajamas Media reports the following response from our favourite Mr Nossik, whose position is unclear but he seems to have been at the time a very big fish in LJ.ru:

“The ignorance of local judges often plays a role in the outcome of cases connected to the internet. I hope that with many journalists present, the judge will look at the essence of the case and not simply hand down a guilty verdict.” Nosik later said: “The people who launched the criminal case are trying in this way to portray police-turned-crooks as a social group that enjoys protection from Russian legislation. It seems to me that it ought be us who are protected by the law, not crooks.”

And less than 4 months after this arrest, Livejournal.com was bought.... READ MORE http://pferde.wordpress.com/2008/03/21/why-livejournal-scares-me/#comment-64

All I can say is I wish I could write as well as this person does...

May 08, 2008 - Source: HIMSS
Who Should Own Data Captured in Personal Health Records?

Ninety-two percent of health care IT professionals said patients should own the data captured in personal health records, according to a survey by the Healthcare Information and Management Systems Society.

Four percent of respondents said providers should own PHR data, while 1% said the company supplying the PHR should own the data.

The survey also found that nearly half of respondents said that privacy and security issues are the biggest barrier to the use of a PHR. Twenty-four percent of respondents said that the biggest barrier to PHR use is that their clinician does not use electronic records.

Thirty percent of respondents said they access a PHR, while 76% of respondents said they believe PHRs need to be integrated with an electronic health record to have value in patient treatment.

Results are based on an April online survey of 675 health care IT professionals.

Source: HIMSS

Readers are invited to send feedback to: ihb@chcf.org

See the article @ http://www.ihealthbeat.org/articles/2008/5/8/Who-Should-Own-Data-Captured-in-Personal-Health-Records.aspx?dp=1 - Source: HIMSS